At the beginning of August, Sirous Sadaghiani, who has been fighting an extremely rare brain tumor called gliomatosis cerebri since the fall of 2012, was moved to the Lucile Packard children Hospital at Stanford as his condition deteriorates.
His father, Reza Sadaghiani, told Patch via email:
"Sirous has been holding up despite of so many new events such as new tumor growth in his spine and expansion in left side brain. It was Aug. 4th that his condition turn to worse and he was going through deep sleep and now we were told he may have gone coma so we decided to take him to Lucile Packard children Hospital at Stanford. He was first in PICU and then he was transferred to Neuro-Oncology Pediatric Department."
Sadaghiani says there are no more treatment options left for his son, who recently turned nine in May.
As Sirous' condition deteriorates, he sleeps more and his life expectancy is now four to eight weeks.
"I truly believe in miracles and have told the medical team that miracles do happen and even in medicine has happened in the past. So please do not give up on him as I have a slogan in his room from Winston Churchill saying: 'Never, Never, Never give up.' I am hoping for the best but realizing Sirous has been a gift from god to us and sometime we have to return it back sooner than we would like. We have enjoyed him tremendously and I am coming to term to prepare for the good bye!"
Despite the sadness his family is struggling with, Sadaghiani wanted to share a story about another family whose son, only a year older than Sirous, who fought the same disease. The boy passed away in March, according to Sadaghiani, and the family sent the Sadaghiani family a Youtube video they prepared in support of Sirous.
Sadaghiani wanted Patch to share the video with the community, who has supported Sirous during this brave battle. Watch the video here.
Sadaghiani says Sirous will be at the George Mark Children's House to relax and be comfortable with his family.
Sadaghiani's final words about Sirous' changing condition are about the love in their family.
"It may have sad moments but I think he has shown us a true bravery, courage, believe, endurance and most of all love to us and so many that he has touch upon," Sadaghiani said. "He is a true hero to me and always celebrate him for rest of my life."
Follow Sirous and his journey on Facebook.
Read about Sirous' brave battle and the past fundraisers held for the Sadaghiani family by the Dublin community.
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